Read extra of Faye’s report right here: https://news.sky.com/story/postcode-lottery-means-groundbreaking-mnd-drug-is-a-lifeline-for-some-but-mental-torture-for-others-13500695
Eleanor Dalley and Lillia Jakeman each have motor neurone illness, however just one has been granted entry to a breakthrough therapy that may halt its signs.
Tofersen is the primary efficient therapy for MND signs. Eleanor was capable of get it by an early entry programme ran by its producer Biogen, which is at present providing it to the NHS without spending a dime.
However, it requires common spinal injections, and whereas the drug itself is free, some NHS trusts say they do not have the workers or assets to manage it.
These points have resulted in a postcode lottery for entry, with individuals like 19-year-old Lillia Jakeman shedding out.
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